Evan was released from the hospital yesterday!!!
Thank you to all who have been praying. Here is Jaime's journal entry for details:
Day +70, our 241st day here...
Wow, today has been a very long and emotional day. There are no words to describe how we feel today. After 241 day in the hospital EVAN IS FINALLY OUT!!!! I guess it makes our let down the past week a bit easier to handle. I am sure you can imagine how busy it has been for us today.
Evan was finally released at 3:15 this afternoon. Our day prior to that was spent packing up the last of our things, taking Ian to the Dental Clinic (more on that later) and making a few trips to the Skywalk Pharmacy (located in the bldg) to pick-up all of his meds. How many meds you are wondering, well hold on to your seat folks.......35 (by G-tube, mouth cares, G-tube cares, IV meds), his TPN and his IV fluids. Yes, that correct and just a bit overwhelming. Some of them are PRN (as needed) but not many! I will share his schedule with you when I have the time (and energy) to type it all!! He is getting something every 6 hours.
He is doing well. It has been a lot for him to take in today. Tomorrow and Friday he has clinic at 1pm. He also has PT on Friday before clinic. They will draw labs each day and any changes will be made then. I will give you more info on our clinic visits once we make it through our first. Please say a prayer for him tomorrow as it is going to be a very big adjustment. Thankfully our fabulous PA, Darci, is going to meet him in clinic tomorrow. She wants to be able to help ease him into things. We are really going to miss Darci. Her office was directly across from Ev's room. I am sure it will be a bit strange for her to not see his crazy green alien picking his nose in a santa hat, that he painted on his door in the morning. We received a huge round of applause from everyone around the nurses station when we left. Yes, I lost it!! Lori, Issy's mom gave me a big hug which also threw me over the edge. Heck, I am starting all over again just typing this. We will miss all of our wonderful "family" on the HOT unit. We have seen these incredible people every day for the last 241 and they have made a huge imprint upon our hearts and souls. Our lives have truly been changed because of all their hard work and dedicate to our precious boy.
Okay, I guess I am a bit more emotional that I thought! I will update more on Ev's medical stuff tomorrow. I will also give you an update on Ian then as well. I just wanted to make sure you could all share in our wonderful news. This journey is FAR from over, we are just on the next new path. Good night and God Bless.